C. Speck update!

[Mike Simpson]

Hi, it's me again, Cathy. Don't forget we're having an ALS fundraiser at Woodstock's in Davis Monday March 1st from 7 to 11pm/Karaoke ! Pizza, drinks, fun friends. A perfect way to start off the week.

AND please please please come to THE REALLY BIG IMPORTANT SHOW at The Palms in Winters Thursday March 11 at 7:30 pm. We are playing first even though we're the headliners.

We have to get a big crowd out there. The ALS folks will be there with the table of ALS info, prizes, things to buy, like bracelets, tshirts, car magnets, alligator skin disco boots, etc.

It will be super fun. The awesome Davis band "Hardwater" is playing after us, so we'll be sure to have some rowdy good fun.

The following email is in response to email from Amy, Executive director of SAc Area ALS.

Pre--PS thanks for the letter in the enterprise Cherie. I heard about all the way past Fort Ross.

Woohooo. Looks fabulous and encouraging.
We had an incredible time on the coast. We lucked out with the weather. Saw some
whales. Soaked in a hot tub outdoors on a deck that over looks the ocean. Our
some of dear friends joined us. LInda had the idea of treating them to the Coast
house in away of thanking them for all of their help . WE will continue
thanking people, and we have many folks to thank!

On our "trip," -- hint hint, a pun coming-- I fell five times. I have a black eye, two bruised knees , a cut finger, and if I had NOT been wearing my wrist braces, I'd probably have two broken wrist and thumbs. But it was SUPER
fun. I have to buy some new wrist braces and gel gloves, but the beauty we saw
on the ocean bluffs was worth the pain. I'm certified in first aid/cpr., and I"m
STILL atomboy. So,I'd rather take the adventure and "hike" on a trail with my
3-wheeled "All-Terrain" walker, than sit at in the coast house with glorious
views, and write poems about it.
Anyhooooo, I'm gearing up for some fundraising and awareness hullabalooing (?)
We went to this restaurant in Timber Cove, and I did some ALS advocacy there.

-

Show quoted text -
On Fri, Feb 5, 2010 at 1:29 PM, Amy Sugimoto a href="mailto:[e-mail]" target="_blank">[e-mail]> wrote:
Hi Cathy, I thought you might enjoy reading about the breakdown of events for Advocacy Day! I hope you had fun on the coast!!! Amy
Sugimoto,Executive Director The ALS Association, Greater Sacramento Chapter2717
Cottage Way, Suite 8Sacramento, CA 95825Office [phone]Cell (916)
284-8299Fax [phone]www.alssac.org Make a donation to the ALS/Lou Gehrig’s
Disease Research fund when you file your California state tax return. For
details go to www.alsa.org/taxreturn. Or ask your tax preparer.

From: ALSA Advocacy [mailto:[e-mail]]
Sent: Friday, February 05, 2010 12:57 PM
To: Amy Sugimoto
Subject: Advocacy Day Registration Opens Feb. 8 at 11am EST

Advocacy Day Registration Opens February 8, 2010 The ALS Association is pleased to announce that online registration for the 2010 National ALS Advocacy Day and Public Policy Conference will open at 11:00am (EST) on Monday February
8, and will be available on The Association's website at www.alsa.org/policy/alsday.cfm. An electronic copy of the 2010
Conference Registration Brochure also will be available on the site and can be
found here. The brochure includes a detailed schedule of events for this year's
conference, which takes place in Washington, DC May 9-11. Hotel information and
details on registration fees, including a new Sunday only option, early bird
registration deadlines and how to reserve an ADA accessible hotel room, also can
be found in the brochure. Please note that in order to request an ADA
accessible hotel room, attendees must contact Mary Wisniewski, event planner for
the conference, at [e-mail] or by phone at 202-746-0043. ADA
room reservations open at 11am EST on Monday, February 8. As always, The ALS
Association waives Conference registration fees for all people with ALS and a
caregiver traveling with them to Washington, DC. New Conference Hotel The
Advocacy Conference will be held at a new venue this year, the JW Marriott
Hotel, located at 1331 Pennsylvania Avenue, just a stone's throw from the White
House and within view of the United States Capitol. Hotel information,
including room rates and reservation instructions are available in the
Conference brochure. Conference ScheduleThis year's conference begins on
Mother's Day, Sunday, May 9, with the annual Roll Call of States and our Prep
for the Hill session, which prepares advocates to tell their story on Capitol
Hill. Sunday's events also will feature the annual Candlelight Vigil, which
will be held at Washington DC's Freedom Plaza, across the street from the
headquarters hotel. Breakout sessions
This year's Conference features new and expanded breakout sessions throughout the day on Monday, May 10. Sessions
cover a wide range of different advocacy, clinical and research topics, from
advocacy training to veterans' benefits, the latest on ALS clinical trials to
Brain Computer Interface Technologies, respiratory research and familial ALS.
The day's sessions also will feature an update on the latest ALS research made
possible by our advocacy, including the National ALS Registry at the CDC and
translational research underway at the Department of Defense's ALS Research
Program. Advocacy Day on the HillThe most important part of the conference -
Advocacy Day on the Hill - takes place on Tuesday, May 11. Through these
meetings with Members of Congress from across the country, we are telling the
ALS story and developing the roadmap that will lead us to a treatment and cure.
For example, since last year's Advocacy Conference, we have:Secured $6 million
to implement the National ALS Registry, a 20% increase over last year. Self
enrollment in the registry is expected to begin in 2010 and the registry may
become the single largest ALS research program ever created! Helped to implement
historic regulations at the Veterans Administration that make ALS a service
connected disease. In 2009 alone, more than 2,000 veterans and their survivors
were awarded health and disability benefits valued at nearly $130 million.
Partnered with Congress to appropriate $7.5 million to continue the ALS Research
Program at the Department of Defense, the only ALS-specific program at DOD,
which is designed to find new treatments for the disease. The funding was a 50%
increase over last year! These are just a few of the accomplishments that have
been realized as a direct result of the Advocacy Conference and your
participation in advocacy activities throughout the year. However, much more
must be done on the road to a treatment and cure, so please join us in
Washington, DC this May. Together, we can continue to make a difference. If you
have any questions about this year's National ALS Advocacy Day and Public Policy
Conference, please contact the Advocacy Department toll-free at 1-877-444-ALSA
or [e-mail]. We look forward to seeing you in
May!

Hi, it's me again, Cathy. Don't forget we're having an ALS fundraiser at Woodstock's in Davis Monday March 1st from 7 to 11pm/Karaoke ! Pizza, drinks, fun friends. A perfect way to start off the week.

AND please please please come to THE REALLY BIG IMPORTANT SHOW at The Palms in Winters Thursday March 11 at 7:30 pm. We are playing first even though we're the headliners.

We have to get a big crowd out there. The ALS folks will be there with the table of ALS info, prizes, things to buy, like bracelets, tshirts, car magnets, alligator skin disco boots, etc.

It will be super fun. The awesome Davis band "Hardwater" is playing after us, so we'll be sure to have some rowdy good fun.

I repeated it, just in case you forgot.

Love, laughter& Gratitude,

Cathy